Today was my 90 day visit to NMH and all is well. Every 90 days the transplant team updates the MRI’s and CT Scans as their normal course of business. I have moved up the list. Last week the team transplanted someone in my blood group. So, now I am #6 for the city and […]
Closer but no banana (yet) Read More »
The news has not changed ! My liver coordinator at NMH placed he office pool bet on April 30th. So, I called her the next day to see if she wanted to change her bet. She put replaced her money on May 10th. My coordinator is a very dear person, but I’ve found someone who
Still Waiting, and waiting, and waiting…. Read More »
It becomes difficult to update everything when there is nothing to report. Of course, no news is still news so here goes… I try to keep my update enquires down to every two weeks. So, on April 15th I dutifully called Katie, my nurse practitioner at NMH. Katie is the keeper of the list and
Another update that isn’t an Update Read More »
Today I had a chat with my nurse coordinator regarding my timing. Katie was non-committal (as she should be) but said anytime from 2 days to 2 months. There is always a better way of extracting information short of water boarding, so I told her we had an office pool and I needed a date and
I took a course in speed waiting. Now I can wait an hour in only ten minutes Read More »
Today was my 30 day checkup at NMH. No change and all is well on the home front. On March 24th, my meld score went up by three points, as it does every 90 days. Now it is a total of MELD-28. Not to over bother my nurse coordinator (although she did stuff herself with
They’re getting closer. – Cool it. Just you wait! Read More »
I got my wings back, and last week was busy for us. Early in the week we were off to Orlando for an Industry function. Later in the week, and over the weekend Nancy and I went to Aspen along with Rob and Laurie. Our hotel was at the bottom of the hill in Snowmass
Warning: dates on calendar are closer than they appear. … Read More »
Well, I haven’t been very good at blogging so it’s time to catch up. Last week began receiving calls from friends to make sure I was still ticking. No news is good news and we’re status quo – but here is the latest…. I completed my 90 day check up. Just as I thought tests were complete more tests come
Things are going well, and over the Christmas holidays we can all reflect on our faith, our family and friends. It doesn’t make any difference our personal situations because we are all blessed. Often the things that we take for granted–family, friends, our health and the ability to help others– produce the most joy in our
Christmas Update + a donor story Read More »
It has been 6 weeks since I got my Y90 treatment. Remember, those are the little glass beads that had radiation in them. I never did have any symptoms from it. Last weekend I had the MRI to check the progress of the tumor. essentially, it is dead. The scan was done with and without
Another Amazing Y90 Story (this time its me) Read More »
Things are going very well on the health front. Over the past week I have had two more of what I believe are the “final” tests. First, last Monday was a colonoscopy. While this is another opportunity for the Lala drugs, the preparation for this procedure does not justify the opportunity. I will not go
Update and some more early detection stories…… Read More »