It becomes difficult to update everything when there is nothing to report. Of course, no news is still news so here goes… I try to keep my update enquires down to every two weeks. So, on April 15th I dutifully called Katie, my nurse practitioner at NMH. Katie is the keeper of the list and […]
Another update that isn’t an Update Read More »
Today I had a chat with my nurse coordinator regarding my timing. Katie was non-committal (as she should be) but said anytime from 2 days to 2 months. There is always a better way of extracting information short of water boarding, so I told her we had an office pool and I needed a date and
I took a course in speed waiting. Now I can wait an hour in only ten minutes Read More »
Today was my 30 day checkup at NMH. No change and all is well on the home front. On March 24th, my meld score went up by three points, as it does every 90 days. Now it is a total of MELD-28. Not to over bother my nurse coordinator (although she did stuff herself with
They’re getting closer. – Cool it. Just you wait! Read More »
I got my wings back, and last week was busy for us. Early in the week we were off to Orlando for an Industry function. Later in the week, and over the weekend Nancy and I went to Aspen along with Rob and Laurie. Our hotel was at the bottom of the hill in Snowmass
Warning: dates on calendar are closer than they appear. … Read More »
Well, I haven’t been very good at blogging so it’s time to catch up. Last week began receiving calls from friends to make sure I was still ticking. No news is good news and we’re status quo – but here is the latest…. I completed my 90 day check up. Just as I thought tests were complete more tests come