Over the past year my blog has received thousands of hits and I have received many E-Mails from folks contemplating an organ transplant. As any transplant patient transits the process it’s all about patient and their survival. Fear, hope, and a myridrid of other emotions affect the patient and their families in additional to their health […]
A YEAR IN REVIEW AND THANKS Read More »
I am now 6 months shy of my 3rd anniversary of my liver transplant. They say one day I might die, but it isn’t going to be because of my liver! I have no restrictions to my daily activities. I ski, fly my aircraft and do everything I love to do. Life is good. My
This is been one of the most amazing weeks of my life. We knew this would be a journey, that there would be twisting turns, but we did not expect the events of this past week. In our last chapter of As the Liver Turns the saga continued…. We were frustrated with the short supply of livers
News We Did Not Expect…. Read More »
Well, it was the night that wasn’t …. We learned a lot one our dry run. First, there is no pizza place open in Chicago at 4:30 AM but the Cinnabon guys are taking their freshly baked goods out of the oven, which at 4:30 AM is better for you. I understand there is always a 10-20%
The night that wasn’t Read More »
Today was my 90 day visit to NMH and all is well. Every 90 days the transplant team updates the MRI’s and CT Scans as their normal course of business. I have moved up the list. Last week the team transplanted someone in my blood group. So, now I am #6 for the city and
Closer but no banana (yet) Read More »
The news has not changed ! My liver coordinator at NMH placed he office pool bet on April 30th. So, I called her the next day to see if she wanted to change her bet. She put replaced her money on May 10th. My coordinator is a very dear person, but I’ve found someone who
Still Waiting, and waiting, and waiting…. Read More »
It becomes difficult to update everything when there is nothing to report. Of course, no news is still news so here goes… I try to keep my update enquires down to every two weeks. So, on April 15th I dutifully called Katie, my nurse practitioner at NMH. Katie is the keeper of the list and
Another update that isn’t an Update Read More »
Today I had a chat with my nurse coordinator regarding my timing. Katie was non-committal (as she should be) but said anytime from 2 days to 2 months. There is always a better way of extracting information short of water boarding, so I told her we had an office pool and I needed a date and
I took a course in speed waiting. Now I can wait an hour in only ten minutes Read More »
Today was my 30 day checkup at NMH. No change and all is well on the home front. On March 24th, my meld score went up by three points, as it does every 90 days. Now it is a total of MELD-28. Not to over bother my nurse coordinator (although she did stuff herself with
They’re getting closer. – Cool it. Just you wait! Read More »